My love affair with art is changing. It has to be. I’m making paintings in my mind. I’m looking at the details of everything I can see from my wheelchair. I’m imagining them in strokes, in different shades, moving – not like a Gif moves, more like waves and clouds, like sunlight through the trees.
My life is my ALS. I don’t want it to be that way. I want to be me. But ALS has moved in. I drag it around with me while my husband Jim takes me to the church services I cherish or to the Chamber of Commerce meetings I so enjoy.
As an artist, runner and sales professional, I’m used to pushing constraints aside. Now I do that by learning Eye Gaze technology. However, I’m also fighting off the ALS straight jacket by raising money for ALS research. I’m donating my paintings and prints and attending events to raise awareness and generate funds to eradicate this horrible disease.
Last year, Jim and his colleagues established The Karen Condron Spirit Center for the purpose of raising sustainable revenue for ALS research. When you buy promotional pens, mugs, caps, and T-shirts, please consider buying from us. We have over 3000 products on the site and many more if you call us with a request.
To learn more about our mission to end ALS, please read My Story with ALS and visit our online store www.karenspiritcenter.com.
My Story with ALS
It started with slurred words. Then the words evolved into a diagnosis: Bulbar-Onset ALS (Lou Gehrig’s disease). Now those hopeless, incapacitating words have become fighting words.
We studied this disease. Why was there no cure? Why no effective ways to slow it down? Who was studying it and what was their approach? We found the Robert Packard Center for ALS Research at Johns Hopkins and it has changed our lives. We learned that what was needed most of all was truly reliable funding year after year so that new big data research methods can analyze and guide meaningful results.
As a result my husband Jim and his colleagues established a 501(c)(3) foundation named to honor my fight: the Karen Condron Spirit Foundation. Donations to it and money from the sale of my watercolors will go directly to support ALS research.
The Trustees also established a business entity to fund the Foundation. It is a promotional products business drawing on our family’s three decades of experience in this industry. After tax proceeds will be used to fund Foundation donations to accelerate a cure.
Karen’s original watercolor teacher and mentor was John Rogers, a well known watercolorist in the New York area.
Has been on forefront of ALS research for the past fifteen years. Their approach to research is one where we facilitate intense scientific collaboration across institutional and administrative boundaries. Their aim is to provide innovative, promising, focused projects with researchers who understand that collaboration is a powerful catalyst in ending the disease.
To learn more about the Robert Packard Center for ALS Research at Johns Hopkins
Wilton CT 06897